Being Sick Sucks! Invisible Illness and me ...

MY DIAGNOSIS ...

Chronic Fatigue Syndrome (Apr 2008)

A long-term illness with a wide range of symptoms. Most people with CFS get better over time, although some people don't make a full recovery. It's also likely there will be periods when your symptoms get better and worse

Behcet's Disease (Apr 2008)

A rare and poorly understood condition that results in inflammation of the blood vessels and tissues. Most people with the condition experience episodes where their symptoms are severe (flare-ups or relapses), followed by periods where the symptoms disappear (remission)

Short Term Memory Issues (May 2008)

Hyper-mobility (Oct 2012) [?Hyper-mobile ehlers-danlos syndrome]

An inherited condition that affect connective tissue. It can affect people in different ways. For some, the condition is relatively mild, while for others their symptoms can be disabling

Hip Dysplasia (Sept 2017)

A condition where the "ball and socket" joint of the hip does not properly form. The hip joint attaches the thigh bone (femur) to the pelvis. The top of the femur (femoral head) is rounded, like a ball, and sits inside the cup-shaped hip socket. The socket of the hip is too shallow and the femoral head is not held tightly in place, so the hip joint is loose. In severe cases, the femur can come out of the socket (dislocate)

Small Intestine Bacterial Overgrowth (Sept 2019) / caused by ?Inflammatory Bowel Disease (Jan 2018) [Under Investigation]

SIBO is a medical condition in which a person has an unusually large population of bacteria in their small intestine. SIBO is a complication of other digestive conditions, such as IBS, Crohn's disease, and celiac disease

IBD is a condition that causes parts of the intestine (bowel) to get red and swollen. It's a chronic condition, which means it lasts a long time or constantly comes and goes. There are two kinds of IBD: Crohn's disease and ulcerative colitis. These diseases have many things in common, but there are important differences

Raynaud's Disease (May 2018)

 A condition where the small blood vessels in the extremities are over-sensitive to even the slightest changes in temperature, the cold and sometimes stress. Raynaud's phenomenon is a common condition thought to affect up to ten million people in the UK and can impact your life. Raynaud's symptoms generally affect the fingers and toes, but all extremities can be involved, including the hands, feet, ears, nose, lips, tongue and nipples. 

Hyperhidrosis (May 2018)

A condition characterized by abnormally increased sweating, in excess of that required for regulation of body temperature. Although primarily a physical burden, hyperhidrosis can deteriorate quality of life from a psychological, emotional, and social perspective. It has been called by some 'the silent handicap'

Chronic Migraine (Jan 2019)

A distinct and relatively recently defined sub-type of Chronic Daily Headache. The International Headache Society defines chronic migraine as more than fifteen headache days per month over a three month period of which more than eight are migrainous. Due to the nature and length of time that the sufferer is affected, people with chronic migraine experience significantly more time absent from work, school, leisure, housework and social activities than episodic migraine patients. Efficiency is also reduced due to chronic migraine, resulting in a more than 50% reduction in productivity from work or school. The impact of chronic migraine can be very disabling. Being incapacitated for over half the month sometimes means that people are unable to work at all, with some claiming disability living allowance. Unfortunately, in many cases, current therapies are not enough to prevent or reduce the impact that chronic migraine has on people’s lives. The World Health Organisation (WHO) has recognised the impact of migraine worldwide and categorised it as the same level of disability as dementia, quadriplegia and acute psychosis. Furthermore WHO classified chronic migraine as more disabling than blindness, paraplegia angina or rheumatoid arthritis

Fibromyalgia

A long-term condition that causes pain all over the body. As well as widespread pain, people with fibromyalgia may also have; increased sensitivity to pain , extreme tiredness (fatigue) , muscle stiffness , difficulty sleeping , problems with mental processes (known as "fibro-fog"), such as problems with memory and concentration , headaches , irritable bowel syndrome (IBS), a digestive condition that causes stomach pain and bloating.

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